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Published 08.12.2008 | Permanent Link | Comments (9)
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Cord Blood Storage
I recently noticed something very odd, something very different about this pregnancy. Over 30 weeks in, and I've yet to receive a single solicitation from the cord blood banks. Last time, the emails came at least weekly. Then daily. Then the phone calls started. Offers of free information kits, sweepstakes drawings, $100 off the collection fee, before-you-hang-up-here's-my-supervisor-with-an-even-better-offer high pressure sales calls.
This time, nothing, save for a half-hearted offer of a brochure at a maternity store.
Cord blood banking, as the name suggests, involves the collection and storage of your newborn's umbilical cord blood. Tasty, delicious, stem-cell-rich cord blood. These unformed stem cells have the ability to turn into mature blood cells -- and could save the life of someone who needs a bone marrow transplant, and possibly other diseases, since stem-cell research remains in its infancy, really. Three years ago, it was heralded as the greatest life insurance policy you could buy for your child and family.
Of course, this policy comes with a steep price tag -- anywhere from $1,000 to $2,000 for the initial collection, plus a yearly storage fee of at least $100, plus other additional fees that can quickly add up. While many new parents are horrified at the idea of letting a little thing like TWO THOUSAND DOLLARS affect a decision that could SAVE THEIR BABY'S LIFE, it is a lot of money. Let's put on our calm, rational thinking caps here.
1) Cord-blood banking is generally only recommended for families with a known history of certain diseases, or who already have a relative suffering from such a disease who could benefit from the cells. These diseases include leukemia or lymphoma, aplastic anemia, severe sickle cell anemia, and severe combined immune deficiency. It's nice to dream about a future where stem cells will be able to wipe out pretty much any disease known to man, but for now, that's the list.
2) The odds that your baby will actually be able to use his or her own umbilical cord blood are low. Again, this is tempered by the relative "newness" of cord blood banking and transplants, but for now the statistics just don't exist for patients receiving their own cord blood to prove that it's better, safer or at all effective. (Some experts point out that a sick baby who receives his or her own stem cells during a transplant could very well just develop the disease all over again.)
3) Stem-cell transplants are generally only done on children and teenagers, since the amount collected at birth is simply too small for most adult transplants. (The larger the person, the more cells are needed for an effective transplant.) C-section deliveries generally yield an even smaller number of usable cells, since the collection usually can't happen until after the mother's uterus has been sewn up. If your family has a history of childhood cancers or an older sibling needs a bone marrow transplant, cord-blood collection may be a no-brainer. But parents who are being pitched on banking as a lifelong investment in bionic super health (stem cells can, theoretically, be stored forever) need to know that the window of actual usability is limited by the patient's age.
4) Another unknown (for now, anyway) is whether or not a cord blood donation from a relative is any better or more effective than one from an unrelated donor, which happens successfully all the time. Stem cells are truly "blank" cells; highly adaptable and at low risk for rejection. Unlike organ transplants, there's no need for a "perfect" stem cell match for a successful transplant.
5) That said, parents of racially or ethnically diverse children may want to bank cord blood because it IS statistically harder to find a bone marrow match in these cases. The National Marrow Donor Program specifically encourages cord blood donations from the following communities, where there is often a critical shortage of matching marrow donors:
Donating Cord Blood
And on that note, what about donating your baby's cord blood? Why, sure! And become a marrow donor yourself, while you're at it. (It's easy and painless, done with a single swab of your cheek, full details here.) The full and extensive list of FAQs for cord blood donation can be found here.
It's important to read and process them all -- it's best to set up your donation by the 34th week of pregnancy, donations from twins and multiples are not accepted, and only about 50% of donations can actually be stored for transplantation because cord blood units do yield such small amounts. However, while the American Academy of Pediatrics believes "storing cord blood as 'biological insurance' should be discouraged because there currently is no scientific data to support (self) autologous transplantation," they DO encourage donating the blood to public banks, both for transplants and research purposes. And no, it costs you nothing to donate your baby's cord blood, other than a few phone calls to make arrangements before you give birth.
Finished with the Pregnancy Calendar and want more? Visit Amalah's postpartum weekly column, Bounce Back. Bounce Back is about the postpartum experience -- the good, the bad and the gory.
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Zero to Forty is a week-by-week guide to the miracle of pregnancy and all the various indignities that come with it. The calendar follows the forty-week model and is complete for now, though the author plans to come back and add some more articles soon.
The follow-up to this column, Bounce Back, is about the postpartum experience -- the good, the bad and the gory. There Amalah is covering everything that happens to your body, mind and circadian rhythms after you have a baby, and (hopefully) help you make sense of the New Normal. You must go read that too!
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Amy Corbett Storch, aka Amalah, is a freelance writer and professional blogger from Washington, DC. She has since had this baby. His name is Ezra, he was born in October of 2008 and is delicious. Amy's first son Noah is in preschool and he's pretty edible too. NomNomNom.
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Comments (9):
Sarah said:
I'm glad you mentioned cord blood donation. We have been put off by the high cost of banking it, especially since it may never be used, but I am happy to donate it if it can help someone in any way. My doctor is willing to collect it and told me that it is becoming more popular to donate it.
Posted on August 13, 2008 13:17
Jenn said:
On the subject of cord blood, why not let your baby have it? Many doctors will cut the cord while it is still pulsing, thus depriving the baby of the oxygen rich blood they may need in those first few minutes. Then they get vitamin K shots and put them under bilirubin bulbs because they can't "cope" with life after birth. (Similar to the argument I got with my son about putting him under a heat lamp instead of letting me cuddle him warm. He's not a cheeseburger people!) Consider if you will and if the circumstances of your birth allow, asking your doctor not to cut the cord until it is done pulsing, thus ensuring your baby gets everything in that cord he/she needs to get off to a good start. Go on and be selfish, that blood belongs to your baby anyway.
http://www.givingbirthnaturally.com/restricted-umbilical-cord-problems.html
Posted on August 13, 2008 15:41
Kristine said:
We debated about the cord blood banking for my son. It came down to not having the $2000 at the time, but also - I felt like the science behind usage was so new that I wanted to donate it more than have it for him anyway. (All the broshures made it pretty clear that the user was usually a sibling.) And as it turns out it was a non issue because there wasn't enough to do anything with and they chucked it in the trash.
Posted on August 13, 2008 15:41
becca said:
We donated our daughter's cord blood, and I am so very glad we did. It was a rather lengthy process, so starting before thirty weeks is probably a good idea. They have to approve you and send you a kit before you deliver. You also have to make sure you read the instructions they send BEFORE labor so that it is all done correctly.
Posted on August 14, 2008 13:39
Mom101 said:
My OB is so infuriated by the entire concept of cord blood banking that she's begging me to write a post imploring people to donate instead. She informs me that there's not one case of a child without a strong proclivity for health ever being able to use his own banked blood and having it save his life. In fact, it's now banned in some European countries as an industry that takes money without actually ever delivering a service in return.
I need to do more research of course. But thought I'd pass on the cynical pov. Just, you know, to stir the pot.
Posted on August 14, 2008 15:05
Keri said:
We donated my daughter's cord blood. During my pregnancy I had received tons of information about banking the cord blood, but I didn't receive one bit of information on donating it. The only reason I knew about it was from my L&D nurse. The nurse told me you normally have to fill out the paperwork ahead of time, but we got it done while I was in labor and I'm so glad we did it.
Posted on August 15, 2008 11:20
Brittany said:
Cord Blood banking is soo important! With my son baby #1 we banked his cord blood with Viacord which is the only company that is FDA approved to collect from a C section birth(*which is what I had*), $2000 is a lot but we payed $171 a month for the first year, and then we only pay a one time yearly fee of around $100. For this pregnancy baby #2, we are going to donate it since we already have one banked privately. There are a lot of things that they can do with the cells, uses not mentioned that can be used for both children and adults, are burn victims, nerve damage, and best of all for the heart! In heart attack victims usually only about 50% of the heart comes back to proper working order. When the heart is injected with the cells, it can bring the heart back to 75-95% working order! Which when speaking about your heart is amazing!
Posted on August 15, 2008 19:59
Crystal said:
I found out that I can't donate my baby's cord blood because of
a-my diabetes (it's the baby's fault)
b-my visits to India (3rd world country, and yeah I accidentally drank some water...my bad)
c-the fact that I had sex with a bisexual guy 4 years ago before I'd met my husband (although I consistently test HIV- and the sexual partner was the most anal-hah!-guy I'd ever met when it came to safe sex)
The thing that really sucks is that the cord banks are bemoaning their lack of multi-ethnic cord blood, and my daughter is half Asian and half Caucasian.
I guess I'll just let the cord stop pulsing then...at least I tried.
Posted on September 2, 2008 19:13
kim said:
Ok, cord blood stuff, all very seeerious and all. But can we get down to the nitty gritty? I am 75% done with this pregnancy, people! 75%! yipeee skippee for meeeee!
(I'm not one of those that enjoys pregnancy, can you tell? This part, though, this time around, not so bad. But still. Only 25% left to go!)
Posted on November 18, 2009 11:53